My LUPUS Story and Diary
mil3tt3I should have wrote this a long time ago. But because I’m too lazy to blog and when I am in the mood to blog I forgot all about it.
I wrote here about LUPUS now being given attention by the government. In fact their was a LUISA project that was launched to aid LUPUS sufferers in our country. Even before LUISA came into the scene, there is already an organization that meets every first Saturday of the month in UST. I have known this through my rheuma who told me when he thinks I badly needed a support group. The truth is, I never planned to go. And I think, never will. Why ? Well, even my husband agrees to this reasoning. In fact he was the one who told me what might happen if I attend one.
At the time I was contemplating to go, I was in my worst shape. Really worst. Hubby told me that I might get depressed once I see people with the same disease as mine suffering more that what I am experiencing. Some might say I should think that I am blessed. But its the exact opposite. Even now when I see fellow LUPUS sufferer and I hear their stories I would end up depressed because I would be thinking if I am going to suffer the same fate. True, I can encourage fellow lupus sufferer, I can be an ear to them if they needed someone to listen to their pains but at the end of the day, at night when I am going to sleep my last thoughts would be, would I also experience that ? Funny, right ? Even in remission, I got that negative attitude. Oh well! That is the result of me being once a healthy girl and then bang! my immune system went haywire. And nothing was the same again.
See ? I am only going to write that I got my LUPUS story publish at LUPUS.ph and as a way of helping fellow lupus sufferer I bought this when we went to UST for the little girl’s check up.
Its nice isn’t it ? The butterfly looks so pretty. I remember the picture in EM’s blog with text “Our symbol maybe beautiful but the disease is not! CURE LUPUS”.
The LUPUS Diary is being sold for Php 828 at the 2nd floor UST Private Hospital (Bone and Joints Center/Section, sorry I forgot). The proceeds will help the Lupus Educ and Research of LUISA ORG.
And may I quote from the LUISA website :
If you care but do not know somebody with lupus, we have a list of patients who will greatly appreciate this lovely practical gift.
For purchases and further details, call Carol or Haydee at (02) 7499746 or (02) 7313001 local 2393
This would definitely cheer up a LUPUS patient.
And by the way, through blogging I got to know another LUPUS patient, besides Ems. Actually I end up knowing her through Entrecard. Some of you might know her, she is EDZ of pasawife.blogspot.com. Yap! Although we cannot see each other personally we are each others support group because we know how each other feel because of the WOLF.
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