Oh yeah! Its not only the baby who is getting her shots. The mommy too!
Today when I went for a check up, Doc gave me two shots – FLU and PNEUMONIA. The flu shots is given every year and the pneumonia shot is given every five years. I know I needed both since my first indicator of a lupus flare is always a FLU. Once I got the temperature everyone who is familiar of my lupus (families, friends, co workers etc) will be overly worried of me. So just a precaution, I know I needed to take the shot.
I’m trying to gather my thoughts so that I will have a decent entry for this. Right now, I have too much worries in my mind. Worries that may or may not materialized in the future.
EDZ death really left me in a shaken state. Up until this time I am still worried as to what direction my lupus will be going. As to what complication I have to endure a long the way. While I was on my way to St. Lukes for my check up, she and what she have been through have been on my mind.
I am still not over EDZ‘ death. I really don’t know the cause of death and I don’t want to know really. Her death scared me a lot. She and I shared the same disease but with different complications. I think Edz’ lupus was discovered when it was already full blown and had so many complications. Mine was diagnosed when it was still starting and yes, I have found a good doctor that is very familiar with LUPUS. Because of him, any complications are detected early.
I’m forcing myself to write to keep my mind from wandering and harboring those unpleasant thoughts. Today, just a few minutes ago, my heart sank when I read this post.
At first my mind refuse to process what I am reading. Seeing the word FAREWELL and the beautiful picture of EDZ gave me shiver. I was thinking, it can’t be right ? But as go through the post, reality start rushing in. I never wanted to hear of death. Especially those that I know who suffered of LUPUS. Its disheartening and have really bad effect on me.
If you have LUPUS, your utmost priority is of course controlling your LUPUS. But you cannot do this alone. Your doctor plays an important factor on how well you fight the “WOLF”. A rheumatologist is the doctor who specialized in LUPUS. I have known this after I was diagnosed to have that disease.
The first doctor to treat my LUPUS is a NEPHROLOGIST. I was at my weakest at that time but I can point out that there is something wrong. The NEPHRO is clueless on how to treat me. My husband then boyfriend and I scouted for doctors. I tell you, it is a frustrating journey for the two of us. Until God finally brought me to HIM.
I will be going tomorrow for a check up with my rheuma. There are still incidents of shortness in breathing and too lazy to get up during the morning, but I think I am doing good. The check up is for my peace of mind.
I am thinking of different possibilities. And all this possibilites are all negative thinking. I have been searching for the signs and symptoms so I am concluding that what i am feeling now may be attributed to another blood clot in the lungs or enlargement of the heart or pneumonia. It isn’t pretty you know. But that how i have been for the past few days. And then I read a lot of LUPUS stories. Which added to my not so good thinking.
Lunch time, my older brother called me saying he was able to watched in one of our local channels about the news LUPUS ADVOCACY WEEK. I was a bit surprised because I know the the WORLD LUPUS WEEK is celebrated every May. Since I am busy I was not able to google about it.
Evening, I received a phone call from my sister in law. She told me to tune in to GMA 7 (since they know I don’t watch this channel ) and there I saw the news about the LUPUS ADVOCACY WEEK.
Last night has been an awful night for me. And I think I am the reason why it turned out the way it turned out.
You see, I have been really really tired doing everything alone. And it did not help that Anevay has been sick on and off for this month. So I get to sleep less and less.
Last night, we were alone in the house. My sister, who is staying with us with her husband left to go home to Pampanga because they are already on leave because my brother in law will be celebrating his birthday on the 2nd of Feb.
..but i do not know what to write. so this entry would be all sorts of things in my mind that in translated into my writing.
i am not feeling well this past few days. i am feeling the fatigue in the morning, a symptom for a flare up. i am trying my best to fight it. because its just me and anevay in the house, i need to cook, clean the house, do the laundry and take care of my ever growing daughter. and thank god, i am able to do those.
Got this from LFA Blog and I am reposting it here to help spread the word.
During this holiday season, you can give the Gift of Hope to millions Americans who are affected by lupus through a year-end contribution to the Lupus Foundation of America. Any gift that you make today to our 2007 Year-end Giving Campaign will lead to a better tomorrow in the fight against lupus.
Through your generous contribution, the LFA will be able to provide hope and support to almost 2 million people — women, men and children and their families — who live with this life-diminishing, life-threatening disease.
