It’s not yet 10pm so I still have time to blog about today.
My day started early with the princess waking me up around 4 am. Yes, 4am! And she wanted to play. To entertain here, I turn on the laptop and show her the Dora screensaver. Well, that did the trick. After 30 mins, I was able to put her back to sleep. We ended waking up at around 8am.
After cooking champorado, I fed her and then gave her vitamins. I took a bath and then when she saw we all dressed up in my jeans, she cling to me. Her lolo and lola got her from me and they went to the park. To avoid the crying session, I go my way without kissing her goodbye. That’s painful for me, really!
I first went to Good Shepherd laboratory for my result. Unfortunately, there filing is such a mess! I ended up wasting my 30 mins just so they could retrieve my record. Kaasar! Pero in fairness, there lab fees are really cheap ha. And it was also my fault because the receipt bore my married name but the request of Dr. is in my maiden name. Opo, 2 years na kong kasal but my doctor just keep on forgetting to write LOPEZ.
I just sense that I won’t be able to make it at 11am sa St. Lukes. So I texted Badeth, Dr. I’s secretary to wait for me. Good thing, he still have some patient.
When it was my turn for the check up, two things are not in sink. My hemoglobin and my PT INR. The INR shot up to 4.2, which on my previous experiences it was only 2 something. The high hemoglobin might result to blood clot so I will have to go back after two weeks for another check up. To lower the INR, I am now on Coumadin 2.5 everyday except Tuesdays and Fridays where I need to take 5 mg of Coumadin. And prednisone 5 mg MWF.
But nothing much to worry though. In fact, Dr. I and I had a nice chat. I told him my stories about meeting one of his patient online. He was indeed surprise that I was able to reach out to fellow lupus patients.
In the course of our conversation, I told him that I am telling my story to fellow lupies and he in turn have said to me, ’so, are they amazed with your story?’. There I felt his pride. The pride that after all the I have been through because of LUPUS, I am still alive and kicking!
And of course, he is one of the factor why I am still alive.
You know, he has been my rheuma for almost four years now. Since 2003. He have seen me as an underweight lupie who has a hard time walking. He have been there for every hospitalization I have, ready to scold me for not following his instruction ;). He was there when I was operated in my lungs and was the first doctor to figure out that I had pulmonary embolism. He was not only a doctor. He was also my defender. When my HMO declined to shoulder my hospital bill he was quick to call the HMO rep and straighten things out. He have done some more trick just so I won’t end up exceeding my HMO limit. He was there when I was pregnant, he was the one who refer me to a great OBGYNE and he was there when I gave birth. But he is nowhere in sight when I need to pay his professional fee (believe me, we need to hunt him just so we can give him his money).
He is one good doctor, I tell you. And now he is the reason why suddenly I felt blessed. The conversation with him have reminded me that I did one amazing thing. One thing, that I have forgotten. To show the world, that there is life even with LUPUS.
I am knee deep in sadness not being able to accomplish something that I wanted for days now. Feeling a little bit low thinking I am such a failure eh ang liit lang naman ung nde ko nagawa. OA lang ako. Exaggerated. But through him, I was able to remind myself, I have done one thing that not all are priviledge to do. To stand up after a hard fall.
Thanks Doctor I, I owe you my life!

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