dramas of my life

LUPIE, is the word I got from a LUPUS forum way back 2002. When I am researching about my illness. From then on  I call myself a LUPIE and those that suffered the autoimmune disease associated with wolf (latin LUPUS) and butterfly (rash).

LUPUS is a rare disease not known to many. And in the Philippines its not that popular. In fact, I was a guinea pig to the first hospital I was confined. And to think they are a big hospital, I was the first case of lupus to them.

On the early years of being diagnosed with the disease, I feel like I was the only person in our country who have it. But as I frequent the clinic of my rheuma I get acquinted to some of them.

But its a different story online. Yes, I’ve met some blogger who have LUPUS but none of them are Filipina. Until recently, I came across one through the WehaveLupus.Com forum and another through blog hopping.

Today, while I am going deep down my depression, the two of them (without them knowing) have uplifted my spirit.

Norly Grace, a fellow Pinay LUPIE, recently diagnosed is the one I met through WehaveLupus forum. Through the forum we have exchanged mobile number and she texted me this morning. Tonight while doing some blogging I thought of adding her in my YM. Fortunately, she was online too! We were laughing and at the same time commented that its a small world. She is from Santiago, Isabela and her rheuma is my rheuma too! Imagine that! Well, my rheuma’s hometown is the same as hers and he go there once a month to be of service to his ‘kababayan’. We share some stories about him and I told her to stick with him because he is a good doctor. If he is not, then I won’t be here talking to her or writing this entry.

The other Filipina LUPIE is Emmyrose. I saw her blog and I love it. The title ‘Dancing with Butterfly’  just says it all for someone with LUPUS.  She had lupus for six years now. Her comments always tells me that I am not alone in my battle.

I am glad that I have met both of them. And can talk to them through the internet. These days I rarely go out to socialized but through technology, I do not have to go far to share my thought to someone who can understand.

Thanks, ladies!

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