http://belles-lettresofmilet.romelettedlopez.com/2007/06/02/shedding-some-light/ dramas of my life Mon, 08 Mar 2010 09:42:34 -0700 http://wordpress.org/?v=2.8.1 hourly 1 http://belles-lettresofmilet.romelettedlopez.com/2007/06/02/shedding-some-light/comment-page-1/#comment-59 Marilyn Celeste Morris Sun, 03 Jun 2007 00:52:30 +0000 http://belles-lettresofmilet.romelettedlopez.com/?p=171#comment-59 I just read your entry for today. I understand how you must have been eager to get on with your life as a "normal" person, in particular when you have this precious little baby, and did not want to continue taking meds. You were very lucky. I suppose you know that, but I had to take chemotherapy at one time, and it's not pleasant. Cytoixan and then Imuran, and my mouth tasted like I had licked a dirty ashtray. But it got me out of a bad flare, where I had vasculitis in my ankles and I couldn't walk very well, and was still able to go to work as a "temp" with a cane in hand. I have written a book about lupus that you might relate to, as I kept a daily journal about my struggles to be diagnosed and treated with this mysterious disease. It is called, Diagnosis: Lupus: The Intimate Journal of a Lupus Patient and I relate my anger, fear, symptoms, hopes, unemployment, going to the county health system for my medications because I have lost yet another job due to lupus..... I am also a facilitator for our local Lupus Support Group here in Fort Worth TX and talking to others is an immense help. Perhaps you could help a newly-diagnosed person in your area, if you're not already doing that. Anyway, my book is available on Amazon. com. I also have a blog shown above. Best of luck to you and your family. Marilyn Celeste Morris I just read your entry for today. I understand how you must have been eager to get on with your life as a “normal” person, in particular when you have this precious little baby, and did not want to continue taking meds.
You were very lucky. I suppose you know that, but I had to take chemotherapy at one time, and it’s not pleasant. Cytoixan and then Imuran, and my mouth tasted like I had licked a dirty ashtray. But it got me out of a bad flare, where I had vasculitis in my ankles and I couldn’t walk very well, and was still able to go to work as a “temp” with a cane in hand.
I have written a book about lupus that you might relate to, as I kept a daily journal about my struggles to be diagnosed and treated with this mysterious disease. It is called, Diagnosis: Lupus: The Intimate Journal of a Lupus Patient and I relate my anger, fear, symptoms, hopes, unemployment, going to the county health system for my medications because I have lost yet another job due to lupus…..
I am also a facilitator for our local Lupus Support Group here in Fort Worth TX and talking to others is an immense help. Perhaps you could help a newly-diagnosed person in your area, if you’re not already doing that.
Anyway, my book is available on Amazon. com.
I also have a blog shown above.
Best of luck to you and your family.
Marilyn Celeste Morris

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