I was also found to be very low in Vitamin D….since taking it I’m so much better in my joints and swelling! Also, look for allergies. I was bad last night after having wheat and tomatoes. Coughed all night and woke up sore and stiff.

Keep on keeping on! Glad we found us!

i am somehow sad that you did not leave any contact info. i wanted to help. having lupus is hard, but i know it is harder for parents who have children with lupus.

my advice ? do not depend on the doctor. do your own research. if i have depended on my 1st doctor i might not be able to enjoy my life now. also, show your child LOVE. because that was what i have hold on to when I was on the darkest point of my battle with LUPUS. lucky, you’re child have you. when i was diagnosed I only have my boyfriend and siblings. my parents have died when i was only 15.

leave your contact details but i will be checking if you belong to that lupus forum.

thanks.

I don’t have a lot of the major symptoms to Lupus- like the high fevers, mine have not gone over 99 F, and as I said in my journal my ANA came back negative. This is why they won’t diagnose it as Lupus for me.

Now I haven’t had my heart or lungs checked and I am not even sure they are going to do that now since this last rheumatologist said he was pretty confident I have fibromyalgia.

I just hope that my GP doctor will continue to work with me to figure out what really is going on because honestly I don’t think it is fibromyalgia- but then again perhaps I could be in denial.

I want answers to my hair loss, my bouts of anemia, and my nose sores. If they find answers to those and they are separate from any illness I’ll be happy. Although everything I read brings me back to SLE (Lupus).

Thank you for you post here- I hope you stay well.